He’s Covered In Bandages. When I Saw Why? My Heart Dropped!

He’s Covered In Bandages. When I Saw Why? My Heart Dropped!

When I watched this video, my heart initially broke a little, at watching this young boy’s story. But by the end of the video, I was smiling, and had a new appreciation for the strength of this young man, and the people in his life.Jonathan Pitre from Ottawa, Ontario is what is known as a “butterfly child”.

That is because he suffers from an ultra-rare condition known as Epidermolysis Bullosa (EB), which makes his skin as delicate as the wings of a butterfly. Jonathan lives in constant pain, and his mother works with him daily to support him and take care of his body as best she can. Jonathan doesn’t let his condition get him down, and has chosen to become an advocate for informing people about his condition, and raising money for EB awareness. His story is an incredible one, and I warn you now to get the tissues handy, because his story is one of pain and suffering and triumphing over anything life throws at you.

Sources:
Ottawa Citizen
YouTube
Debra Canada 

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